Welcome! Our research team is validating tools that assess how families of children with complex disabilities or medical conditions are doing with 'feeding their children' and 'managing their medical technology'.

The goal of this research is to create a very short version of the survey you are about to complete so that it can be used to evaluate the health care children receive.  We want to make sure it reflects the experience of families.
Taking part in the study involves filling in 1-3 questionnaires up to twice, which will take 30-75 minutes each time. You can leave the survey and come back anytime.

When we have the results, we will post a summary of the overall study findings on Twitter or Facebook.  Please feel free to share the study findings with your health care provider.


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To save your responses and end the survey, click the 'End Survey' button below. If you have selected the wrong option by accident and/or wish to return to the survey, click the 'Return and Edit Response' button.