Welcome! Our research team is validating tools that assess how families of children with complex disabilities or medical conditions are doing with 'feeding their children' and 'managing their medical technology'.

The goal of this research is to create a very short version of the survey you are about to complete so that it can be used to evaluate the health care children receive.  We want to make sure it reflects the experience of families.
Taking part in the study involves filling in 1-3 questionnaires up to twice, which will take 30-75 minutes each time. You can leave the survey and come back anytime.

When we have the results, we will post a summary of the overall study findings on Twitter or Facebook.  Please feel free to share the study findings with your health care provider.


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You have selected an option that triggers this survey to end right now. To save your responses and end the survey, click the button below to do so. If you have selected the wrong option by accident and do not wish to leave the survey, you may click the other button below to continue, which will also remove the value of the option you just selected to allow you to enter it again and continue the survey.
The response has now been removed for the last question for which you selected a value. You may now enter a new response for that question and continue the survey.